Tuesday, April 14, 2015

4-13-15 admitted back to the hospital

When I was pregnant with kyle I never thought twice about what CHD meant. Now, it's such a huge part of our life. It's made such an impact on our family. We've all learned so much about it. Please, instead of getting annoyed by posts about it, let's all just help spread awareness! 
Kyle is admitted back into the hospital. He can't tolerate anything to eat. By mouth or the tube. He throws everything up then dry heaves. I feel so bad for him! That has to hurt so bad! All of the testing for vital infections, common cold, rsv, etc etc came back negative! 
look at that smile! It holds me together. I miss my other 3 boys like crazy and I feel so bad being away from them. I know they're in amazing hands with tara right now but I feel so bad putting so much stress on her! But I'm sure my kids are loving it. They tell me all the time how bad they want to go to taras. Daymon asks me why I can't cook good like tara & Charles always asks me to be a crazy driver like her! I hope she knows how much our whole family appreciates her! 
I woke up this morning wanting to cry. This isn't how I want my baby to spend his days. Getting poked, messed with & feeling so crummy. Then I started thinking about all the medical bills. How are we ever goiang to pay for all this & still be able to enjoy life? Why does money have to be such a struggle? I shouldn't even be worrying about that right now but it's a fact of life. The struggle is real. 

♡Thank you all so so so much. I have never felt so much love in my life as I have lately. I keep telling myself that I can do this. It's not easy, but it'd do anything for any of my kids.♡

Kyle's 3rd Primary Childrens appt

Mr. KY had his 3rd appt on 1-9-15. He now weighs 10 lbs 7 oz! He's gaining weight which is great! He also had an echo cardio gram & that showed that not much had changed from last month. Some more restricting but that's to be expexted. So we're still waiting for the big OHS date.